胡敏华发微博鼓励患者勇敢面对生活,已有2万名网友关注她的微博
“早上见了你,看见你骨瘦如柴、毫无力气地躺在病床上,我心如刀绞……你知道吗,看见你被救护车送来的那一刹那我有多心疼啊!……”一封《致秋梅》,曾温暖了多少艾滋病患者,感动了多少中国人的心,写这封信的胡敏华也被网友们称为“最美护士长”。
本月,胡敏华护士长开通“与艾滋病为邻”的微博整整一年,她的工作和生活也因此充满了特殊的意义。在第24个世界艾滋病日前夕,胡敏华接受了本报记者的专访,分享了一年来与艾滋病患者为邻的温情故事,也说出了自己对“秋梅”们的惋惜和忠告。
张小芳 记者 陈龙
利用下班时间和网友交流
昨日下午2时30分许,记者走进南昌市第九医院感染二科的病房,见到了胡敏华护士长,此刻正是感染二科下午最忙碌的时间,胡敏华身着淡蓝色的护士服,穿梭于一间间病房,仔细询问每一位患者的需要,用微笑鼓励着患者和家属。直到一个小时后,胡敏华才抽出时间,接受了记者的专访。
谈起入选中国网事2010年感动网络十大人物的事,胡敏华显得十分谦虚,她表示自己只是用了一种新颖的方式和患者们“谈心”。说到开通微博一年来的生活,胡敏华表示自己接触了更多类型的艾滋病患者,并在和他们的交流中对患者的内心有了更深的体会,“我能够用他们自己的语言和他们对话,这是我最大的收获。”
胡敏华说,从她的故事被媒体披露后,已有2万名网友关注了她的微博,不少艾滋病患者也通过微博私信、评论等方式和她进行交流。“从他们的问题中可以看出来,有些人对艾滋病几乎没有了解,或者存在很多误解,我只能尽可能地向他们解释。”
胡敏华向记者透露,由于自己的儿子正在读高二,为了不影响孩子的学习,她没有在家中安装宽带,而是下班后用医院的电脑与网友们进行交流。“一般是下夜班后,我会打开微博,回复网友们的每一条评论。”胡敏华利用凌晨病房患者们休息的时间,和网友们交流,每次至少都要两个小时。目前,胡敏华的微博大约每两天更新一次,她表示自己学会手机上网后,会更频繁地和网友们互动。
北京患者打电话找到医院倾诉
自从胡敏华的事迹被本报等媒体报道后,许多来自全国各地甚至旅居海外的艾滋病患者通过微博、QQ和电话等方式,向胡敏华表示了敬意和感谢,也向她诉说了自己的故事。胡敏华告诉记者,一位北京的患者傅康给她留下了很深的印象。
“当时一个男性患者打电话到我们科室,点名要和我说话。”胡敏华说,今年4月,一个自称是其同学的北京人通过114查号台找到了南昌市第九医院,并希望和胡敏华说几句话。胡敏华接听电话时,对方一直要求确认她的身份,在得到确认后却沉默了很久,“他后来哭了,哭得很痛苦,还一直叫我大姐。”胡敏华根据经验,并没有询问对方的隐私,而是不断地鼓励和安慰他,“后来他经常给我打电话,问我自己该怎么办。”
原来,电话里的男性名叫傅康,今年30多岁,是北京某知名艺术院校的讲师,年轻有为的他在事业上取得了不小的成就,但由于一直没有过上人们眼中正常的家庭生活,他开始“厮混”,并进入了当地的一个男男群体,且染上了艾滋病。这对于傅康来说无疑是个晴天霹雳,美好的未来似乎彻底断送了。傅康开始放弃自己,甚至“人间蒸发”了,直到有一天,他在报纸上看到了胡敏华的故事,于是想办法联系上了她。
通过与胡敏华的交流,傅康对艾滋病有了正确的认识,也开始重新规划自己的生活。胡敏华告诉记者,目前,傅康已回到安徽老家,正积极配合医院的治疗。
秋梅的离去深深触动了她的心
很多人知道胡敏华这个名字是从《致秋梅》这封给艾滋病患者的信开始的,胡敏华将自己护理艾滋病患者秋梅,以及与秋梅交流的点滴故事写成了一封信,希望更多的人对艾滋病有一个正确的认识。不少人很关心秋梅目前健康状况如何,秋梅是否已经过上了正常的康复生活。当记者带着这一问题询问胡敏华护士长时,却得到了她一声长长的叹息。
胡敏华告诉记者,虽然医院竭尽全力救治秋梅,但仍未能挽留住她年轻的生命,34岁的秋梅在2010年的圣诞节前永远离开了这个美好的世界。“如果查出患病时就开始服药,她的身体状况就不会那么糟,也不会这么快离开这个世界。”胡敏华说,2008年秋梅被查出感染艾滋病,但住院了两个月后,秋梅却神秘失踪了。胡敏华第二次看到秋梅时,已经 是2010年11月,邻居将奄奄一息的秋梅送往第九医院救治,此时的秋梅几乎是皮包骨头,眼中看不到一丝生活的光芒。正是由于被秋梅的经历深深触动,胡敏华才决定用微博与艾滋病患者交流,并将给秋梅的信发表在网上。
胡敏华说,2008年,来医院分娩的海棠也被查出了艾滋病,胡敏华决定将她和秋梅结成帮扶对子,共同与病魔作斗争。三年后,海棠依然勇敢地生活,每天享受着接送儿子上幼儿园的幸福时光,而秋梅却因为逃避失去了生的希望。胡敏华希望秋梅的遗憾,不要再在艾滋病患者身上重演,只有乐观生活、坚持治疗,才会给自己、家人和社会增添幸福的光芒。
(为了保护艾滋病患者的隐私,记者将胡敏华谈话中涉及的患者姓名、地点和职业等信息进行了修改,但保留了故事情节的真实性。)
【人物名片】
胡敏华,南昌市第九医院感染二科护士长,中国网事2010年感动网络十大人物之一。1988年参加工作,曾担任妇产科助产士、传染病科护士等岗位,2001年起与艾滋病患者接触,并开始关注这一群体,此后一直负责艾滋病病房、结核病病房的护理工作,是我国内地最早一批参加艾滋病患者护理培训的护士。2010年5月起,南昌市第九医院感染二科成立,主要接收艾滋病患者,胡敏华担任护士长。
2010年11月,胡敏华开通了“与艾滋病为邻”的实名微博,分享自己工作中的经历和心得,并通过网络与艾滋病患者进行交流,给予他们鼓励和生活的信心。11月中旬,胡敏华写下了《致秋梅》给艾滋病患者的一封信,这一行动经过《南昌晚报》等媒体报道后,感动了许多艾滋病患者和全国的网友,也让胡敏华得到了“最美护士长”的称号,并入选中国网事2010年感动网络十大人物。
【对话】
患者只要治疗就能正常生活
记者:目前,南昌的艾滋病患者在不断增多吗?
胡敏华:是一年比一年多。我们医院是省艾滋病治疗中心,中心开设以来,已累计收治了250多个病例,需要住院的人数占到了其中的6%左右。
记者:根据您的经验,这几年艾滋病患病群体呈现出怎样的趋势呢?
胡敏华:年龄群体往两头发展,年轻人在增多(除了遗传,最小的有20多岁),老年人也在增多(六、七十岁的患者也很常见)。这主要是通过血液传播和性传播造成的,吸毒、男男性行为及不当的性滥交造成的。
记者:他们有什么共同点吗,比如心理方面?
胡敏华:恐惧。这些人由于不了解而产生了恐惧心理,逐渐远离家庭,远离社会,自己放弃自己,这些对艾滋病患者来说是最危险的。
记者:那有没有什么值得欣慰的地方呢?
胡敏华:有的。随着越来越多的人了解艾滋病常识,和人们对艾滋病患者的宽容,为艾滋病患者的治疗创造了有利的治疗环境。
【微博语录】
1.面对生死,病者别无选择。但死却是太简单的事,不仅简单,而且痛快舒畅;可死却要让这个世界上我们最爱的亲人们承受切肤之痛。
2.乔布斯的名言“记住你即将死去”帮我们指明了生命中重要的选择。因为所有的荣誉与骄傲、难堪与恐惧,在死亡面前都会消失,我们看到的是留下的真正重要的东西。
3.现实世界中有太多的事情就像“大山”一样,是我们无法改变的,或至少是暂时无法改变的,“移山大法”启示我们:如果事情无法改变,我们就改变自己。
4.微笑地生活,过着平常的日子,守着淡淡的岁月,即使是坐在窗口静静地看云,偶尔,天空上有几只鸟儿快乐地飞过,也是一种幸福。
艾滋病不治会早死,早治才康复 艾滋病不治会早死,早治才康复 艾滋病不治会早死,早治才康复 艾滋病不治会早死,早治才康复
|
图示∶2011年5月正式出版的《中国特色医疗金鉴》登载的刘君主任及其机构事迹 |
|
|
艾滋病新鸡尾酒疗法 附 HIV感染者,早吃药早受益
"The most beautiful nurse" and the neighbors of AIDS
http://www.workercn.cn2011/11/19 10:06 Source: Nanchang Evening News
Hu Minhua hair microblogging encourage patients to confront life, there are 20,000 users concerned about her microblogging
"In the morning met with you, see you skinny, there is no effort to lay in bed, my pains ... you know, the ambulance was sent to see you the moment how much I feel bad ah! ..." A letters "To Qiumei", the number of AIDS patients have been warm, touched the hearts of many Chinese people, to write this letter Hu Minhua netizens also called "the most beautiful nurse."
This month, Hu Minhua nurse opened "and the AIDS neighbors" microblogging whole year, her work and life so full of special significance. In the first 24 on the eve of World AIDS Day, Hu Minhua accepted reporter's interview, a year to share with the AIDS story is adjacent to the warmth, but also tell their own on the "Qiu Mei" who's sorry and advice.
Zhang Xiaofang Chen reporter
Use of work time and surfers
Yesterday 14:30 Xu, correspondents into Nanchang Hospital Second Department of the ninth ward, met Hu Minhua nurse, at the moment is infected with two subjects at the busiest time, Hu Minhua Hu Shifu dressed in light blue, shuttle in a ward, asked in detail about each patient's needs, with a smile to encourage the patients and their families. Until an hour later, Hu Minhua before taking the time to accept a reporter's interview.
Selected about 2010 moved to China Internet Network Ten things to do people, Hu Minhua appears to be very modest, she said he only used a novel approach, and patients who "talk." Speaking of open microblogging year of life, Hu Minhua said he was exposed to more types of AIDS patients, and their communication in the patient's heart in a deeper experience, "I was able to use their own language and talk to them This is my greatest achievement. "
Hu Minhua said that from her story by the media after the disclosure, there are 20,000 users concerned about her to it, and many AIDS patients but also through the microblogging private letter, comments, etc. to communicate with her. "From their questions can be seen, some people are almost no understanding of AIDS, or there are many misconceptions, I can only explain to them as much as possible."
Humin Hua told reporters, because his son is Reading High School, in order not to affect children's learning, she did not install broadband at home, but after work with the hospital's computer to communicate with netizens. "Generally Xiaye Ban, I will open to it, and reply comments netizens of each." Hu Minhua morning ward patients who use the rest of the time, and users to exchange, each must be at least two hours. Currently, Hu Minhua microblogging updates about once every two days, she said he learned after the mobile Internet, and users will have more frequent interaction.
Beijing were called to the hospital to talk
Since Hu Minhua deeds were newspaper and other media reports, many from across the country and even expatriate AIDS through micro-Bo, QQ and telephone, etc., paid tribute to Hu Minhua and thanks to her tell her story. Humin Hua told reporters, a Beijing health to her patients Fu left a deep impression.
"It was a call to our male patient department, naming, and talk to me." Hu Minhua said, in April this year, a claim the Beijing students through its 114 directory assistance to find the ninth hospital in Nanchang, and hope and Hu Minhua say a few words. Hu Minhua answer the call, the other has been asked to confirm her identity, but the silence has been confirmed for a long time, "he was crying, crying pain, has also been called my eldest sister." Hu Minhua experience, and did not ask each other privacy, but continue to encourage and comfort him, "and later he often called me and asked me how to do yourself."
It turned out that the phone's men named Fu Kang, 30 years old this year, a well-known art school in Beijing lecturers, young and promising career, he made no small achievement, but has not been on the eyes of normal people family life, he began to "hang out" and a man entered a local male population, and infected with AIDS. This is undoubtedly a Fu Kang bolt from the blue, a bright future seems completely ruined. Fu Kang started to give up their own, or even "disappeared" until one day he saw Hu Minhua in the newspaper story, so try to contact her.
Communication with Humin Hua, Fu Kang have a correct understanding of AIDS, have begun to re-plan their lives. Humin Hua told reporters, Fu Kang has returned to Anhui Province, is active with the hospital treatment.
Qiu Mei's departure deeply touched her heart
Many people know that Hu Minhua the name is from "To Qiumei" this letter to the beginning of the AIDS patients, Hu Minhua Qiumei their care for AIDS patients, and the story bit by bit communication with Qiumei a letter written in the hope that more The people have a correct understanding of AIDS. Many people are concerned about Qiumei current health status, Qiu Mei has been on whether the recovery of normal life. When a reporter asked Hu Minhua nurse with this problem, they soon got her a long sigh.
Humin Hua told reporters, although the hospital where Qiumei every effort has not yet been able to retain her young life to live, 34-year-old Qiumei before Christmas in 2010, never to leave this beautiful world. "If you identify sick, I started medication, her physical condition would not be so bad, would not be so quick to leave this world." Hu Minhua said that in 2008 Qiumei was found infected with AIDS, but the hospital two months later , Qiu Mei has mysteriously disappeared. Hu Minhua second time to see Qiumei, it is already in November 2010, a neighbor rushed to the dying Qiumei ninth hospital, this time Qiumei almost skinny, the eyes do not see a trace of living light. It is precisely because the experience was deeply touched Qiumei, Hu Minhua decided to use microblogging exchange in patients with AIDS, and to Qiumei letter published on the web.
Hu Minhua said that in 2008, to the hospital delivery Begonia was diagnosed with AIDS, Hu Minhua decided to help her and Qiumei form pairs, together with the fight against the disease. Three years later, still bravely Begonia life, pick a day enjoying the happiness that his son in kindergarten, and Qiumei but because students have lost hope of escape. Hu Minhua hope Qiumei regret, not to repeat itself in AIDS patients, only the optimistic life, adherence to treatment, only to themselves, their families and social well-being added to the light.
(To protect the privacy of AIDS patients, the reporter will be involved in the conversation Hu Minhua patient name, location and occupation and other information has been modified, but retains the story's authenticity.)
[Card] people
Hu Minhua, Nanchang Second Department of Nursing Ninth Hospital, China Internet Network in 2010, moved to one of ten people. To work in 1988, has served as midwife obstetrics and gynecology, infectious disease nurses and other positions, since 2001, contacts with AIDS patients, and started to pay attention to this group, has since been responsible for the AIDS ward, TB ward's care, the first one in China Mainland approved to participate in AIDS care trained nurses. Since May 2010, Ninth Hospital of Nanchang Second Department set up mainly to receive AIDS patients, Hu Minhua as a nurse.
November 2010, Hu Minhua opened "and AIDS as neighbors," the real name to it, and share their experiences and work experiences, and through the network to communicate with the AIDS patients, giving them encouragement and confidence in life. In mid-November, Hu Minhua wrote "To Qiumei" letter to the AIDS patients, this action after "Nanchang Evening News" and other media reports, has touched many of the country's AIDS patients and friends, let Hu Minhua got " beautiful nurse "in the title, and was named in 2010 moved to China Internet Network Ten things people.
[Dialogue]
Patients can live a normal life as long as the treatment
Reporter: At present, Nanchang growing number of AIDS patients do?
Hu Minhua: is year after year. Our hospital is a provincial AIDS treatment center, the center has been opened, has accumulated more than 250 cases treated, the number of people requiring hospitalization accounted for 6% of them.
Reporter: According to your experience, HIV prevalence populations in recent years showing how the trends?
Hu Minhua: two age groups to the development of young people in the increase (in addition to genetic, minimum 20 years of age), the elderly are on the increase (six or seven-year-old patient is also very common). This is mainly transmitted through blood and sexual transmission caused by drug use, MSM and sexual promiscuity due to improper.
Reporter: do they have in common, such as the psychological aspects?
Hu Minhua: fear. These people have a lack of understanding and fear, moving away from family, away from society, give up their own, these AIDS patients is the most dangerous.
Reporter: Is there anything I am happy place?
Hu Minhua: Yes. As more and more people understand AIDS knowledge, and tolerance of people with AIDS, treatment for AIDS patients to create a favorable environment for treatment.
[Microblogging] Quotations
1 face of death, patients have no choice. But death is too simple to do, not only simple, comfortable and happy; may die, but to make this world our favorite relatives to bear painful experience.
2 Steve Jobs's famous "Remember you will die", to help us the important choices in life. Because all the honor and pride, embarrassment and fear will disappear in the face of death, we see the real important things left behind.
3 the real world there are too many things like the "big mountain", is we can not change, or at least temporarily can not be changed, "move mountains Dafa" tells us: if things can not change, we change ourselves.
4 smile life, live ordinary day, guarding a touch of years, even if quietly sitting in the window to see clouds, occasionally, the sky has a few birds flying happily, is a blessing.