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4岁艾滋女孩渴望上幼儿园 一家三口都感染艾滋病
2010年05月28日 10:04 来源：钱江晚报
昨天，记者作为杭州市第六人民医院“关爱家园”的志愿者，探访了杭州一户在贫困中求生的“艾滋家庭”。
4岁的女孩颖颖(化名)和父母一样都感染艾滋病后相继发病，目前一家三口都在接受艾滋病特有的鸡尾酒疗法。这个家庭中，父亲在家闲着，母亲为了生计在工厂上班，女孩颖颖也不敢有上幼儿园的奢望。
寂寞小颖颖没有玩伴
见到医生和记者，颖颖瞪着大眼睛，看到来人，特别警觉，始终不肯靠近我们，只是倔强地抿着小嘴。接过“关爱家园”送的玩具小火车，颖颖就跑到一旁玩得爱不释手。
“邻居都知道我们家的事情，不让家里的孩子跟她玩。”奶奶说，虽然大人都知道孩子一起玩不会传染，但心里始终有芥蒂。没了小伙伴，颖颖其实很寂寞。“得上幼儿园了，她这个状况，我们不知道怎么办。”奶奶说，他们怕被幼儿园拒绝，所以也没有去打听过。
在“关爱家园”登记的艾滋病感染者中，已经有多户“艾滋家庭”，他们的孩子和颖颖的年龄都很接近。
“孩子现在每天都要吃药，吃的与我们大人的片剂不同，是是液体的，味道有点甜。”尽管如此，颖颖对于吃药还是很抗拒，爸爸只能用喂药器一次次把药物灌下去。
“关爱家园”中心主任时代强说，孩子因为对药物治疗的依从性差、加上药物对生长发育的影响，他们患病后的风险比成人要大，国外数据显示，这样的孩子存活期没有超过15岁的。“希望随着艾滋病治疗药物研究的进展，能提供更好的治疗方案。”
“鸡尾酒”疗法起了作用
颖颖的爸爸阿勇(化名)是全家最早确诊的一个。去年年底，他因反复咳嗽被怀疑为肺结核，却在检查中被发现感染了艾滋病病毒，随后，妻女陆续确诊。这个消息，一度让身体虚弱的他支撑不住。疾控中心的工作人员回忆说：“当时我们去进行流行病调查时，他已经无法下床。”幸运的是，鸡尾酒疗法对他起了作用，现在的他，乍看与正常人无异。
昨日我们没有见到阿勇的妻子，她正在工厂上班。艾滋病病毒的治疗药物虽然免费提供，但并发症的治疗仍然需要自己花钱，她必须工作。阿勇说，他也想找份工作，但自生病以后，他就失去了原来的工作。
现在，夫妻两个最牵挂的是他们的女儿小颖颖。“她还这么小，还没有享受生活的美好，现在连幼儿园也不敢上，也没钱给她上，我们对不起她啊。”父亲愧疚地说。（记者 林丹 通讯员 黄彩红）4歲艾滋女孩渴望上幼兒園一家三口都感染艾滋病
2010年05月28日10:04 來源：錢江晚報
昨天，記者作為杭州市第六人民醫院“關愛家園”的志願者，探訪了杭州一戶在貧困中求生的“艾滋家庭”。
4歲的女孩穎穎(化名)和父母一樣都感染艾滋病後相繼發病，目前一家三口都在接受艾滋病特有的雞尾酒療法。這個家庭中，父親在家閒著，母親為了生計在工廠上班，女孩穎穎也不敢有上幼兒園的奢望。
寂寞小穎穎沒有玩伴
見到醫生和記者，穎穎瞪著大眼睛，看到來人，特別警覺，始終不肯靠近我們，只是倔強地抿著小嘴。接過“關愛家園”送的玩具小火車，穎穎就跑到一旁玩得愛不釋手。
“鄰居都知道我們家的事情，不讓家裡的孩子跟她玩。”奶奶說，雖然大人都知道孩子一起玩不會傳染，但心裡始終有芥蒂。沒了小伙伴，穎穎其實很寂寞。 “得上幼兒園了，她這個狀況，我們不知道怎麼辦。”奶奶說，他們怕被幼兒園拒絕，所以也沒有去打聽過。
在“關愛家園”登記的艾滋病感染者中，已經有多戶“艾滋家庭”，他們的孩子和穎穎的年齡都很接近。
“孩子現在每天都要吃藥，吃的與我們大人的片劑不同，是是液體的，味道有點甜。”儘管如此，穎穎對於吃藥還是很抗拒，爸爸只能用餵藥器一次次把藥物灌下去。
“關愛家園”中心主任時代強說，孩子因為對藥物治療的依從性差、加上藥物對生長發育的影響，他們患病後的風險比成人要大，國外數據顯示，這樣的孩子存活期沒有超過15歲的。 “希望隨著艾滋病治療藥物研究的進展，能提供更好的治療方案。”
“雞尾酒”療法起了作用
穎穎的爸爸阿勇(化名)是全家最早確診的一個。去年年底，他因反复咳嗽被懷疑為肺結核，卻在檢查中被發現感染了艾滋病病毒，隨後，妻女陸續確診。這個消息，一度讓身體虛弱的他支撐不住。疾控中心的工作人員回憶說：“當時我們去進行流行病調查時，他已經無法下床。”幸運的是，雞尾酒療法對他起了作用，現在的他，乍看與正常人無異。
昨日我們沒有見到阿勇的妻子，她正在工廠上班。艾滋病病毒的治療藥物雖然免費提供，但並發症的治療仍然需要自己花錢，她必須工作。阿勇說，他也想找份工作，但自生病以後，他就失去了原來的工作。
現在，夫妻兩個最牽掛的是他們的女兒小穎穎。 “她還這麼小，還沒有享受生活的美好，現在連幼兒園也不敢上，也沒錢給她上，我們對不起她啊。”父親愧疚地說。 （記者 林丹 通訊員 黃彩紅）
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艾滋病成为第一大死因病种[刘君]的对策与思考4-year-old girl eager to kindergarten HIV are infected with AIDS, a family of three
At 10:04 on the May 28, 2010 Source: Qianjiang Evening News
Yesterday, Hangzhou Sixth People's Hospital as a "care home" volunteers, visited Hangzhou, one in poverty to survive "HIV family."
4-year-old girl Ying-ying (a pseudonym) and, like all parents have after the onset of HIV infection, a family of three are currently receiving HIV-specific cocktail. The family, the father at home idle, the mother to work in a factory to make ends meet, girls Ying-ying did not dare do expect in kindergarten.
Lonely Little Ying-ying no playmates
To see the doctors and journalists, Ying-ying 瞪着大眼睛, come to see, in particular, awareness, and always refused to close to us, just stubborn Min Zhao mouth. Received the "Care home" to send a toy train, Ying-ying went to the side of good time put it down.
"Neighbors know about our things, not to play with her children at home." Grandma said that while the adults all know that children play with can not be transmitted, but the heart always grudge. Not a junior partner, Ying-ying is very lonely. "Was in kindergarten, and she this situation, we do not know how to do." Grandma said they fear being rejected kindergartens, so it does not play heard.
In the "care home" registered HIV-infected persons, there have been many families "of HIV family", their children and are very close to the age of Ying-ying.
"Children have to take medicine every day, eat the tablets with different adults and is a liquid, and taste a little sweet." Nevertheless, Ying-ying is still very resistant to taking medicine, my father can only be given medicines devices poured down again to drugs.
"Care home" Strong said director of the Center of the times, the children because of poor adherence to drug treatment, combined with the impact of drugs on the growth and development, their risk of illness than adults, after the large, foreign data, such as child survival does not exceed 15 years old. "I hope with the progress of the study drugs for treating AIDS, to provide better treatment."
"Cocktail" therapy played a role
Ying-ying's father yong (a pseudonym) is a family first diagnosed. Late last year, he repeated coughing due to suspected tuberculosis, but the inspection found to be infected with HIV, then, his wife and daughter after another confirmed. The news, once so frail he was able to survive. CDC staff recalled: "We had to carry out epidemiological investigations, he has been unable to get out of bed." Fortunately, the cocktail therapy played a role for him now that he, at first glance different from normal people.
Yesterday we did not see yong's wife, she was factory. Although the treatment of HIV drugs available free of charge, but the complications of treatment still need to spend their own money, she must work. Yong said he looking for a job, but since the illness, he will lose their jobs.
Now, the husband and wife are the two most concerned about their daughter Ying-ying. "She is so small, do not enjoy the good life, and now even the kindergartens are not, there are also no money for her, we are sorry for her ah." Said the father guilty. (Xinhua correspondent Lindane yellow color red)
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